15th IFKF Annual Meeting Oct. 3rd - Oct. 6th, 2014 LYON - FRANCE

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1 15th IFKF Annual Meeting Oct. 3rd - Oct. 6th, 2014 LYON - FRANCE Kidney Foundations and global management of kidney diseases Venue and accommodation : Résidence Villemanzy 21 montée St Sébastien LYON Ph : residence.villemanzy@belambra.fr For hotel room reservation : code IFKF 2014 Registration and information : BAL Congrès Brigitte Hautier Ph : brigitte.hautier@free.fr

2 15th IFKF Annual Meeting Oct. 3rd Oct. 6th, 2014 LYON - FRANCE Kidney Foundations and global management of kidney diseases Proudly hosted by: Fondation du Rein Université de Lyon Hospices Civils de Lyon Ville de Lyon Program Committee: Mohammed Benghanem Gharbi (Morocco) - Guillermo Garcia Garcia (Mexico) Michel Godin (France) - Lynn Kulasingham (Malaysia) Maurice Laville (Chair, France) Tom Oostrom (Co-Chair, Netherlands) - Marianne Vennegoor (UK)- Christoph Wanner (Germany) Local Organizing Committee Maurice Laville, MD (Université de Lyon) Luc Lauriau (Fondation du Rein) Brigitte Hautier (Conference secretariat, Lyon) Cinthya Uzcategui (IFKF secretariat, CONGREX, Panama) Sponsors: AbbVie (Paris) Adrea (Lyon) Gambro Industries (Lyon) Roche (Paris) Physidia (Angers) Hospices Civils de Lyon Université Claude Bernard Lyon 1 - Ville de Lyon 15th IFKF Annual Meeting, Lyon / France 2 October 3 6, 2014

3 Meeting at a glance DAY 1 Friday, October 3 rd, :00 12:30 Plenary Session 1 and Workshops: Integrated kidney care (Joint session) 12:30 13:30 Opening ceremony 14:30 16:00 Meetings of Kidney Foundations by type of organization 16:30 17:15 Guest lecture 1 17:15 18:00 Guest lecture 2 19:00 20:00 Welcome reception and cocktail Town Hall 20:30 22:30 Diner Maison Villemanzy DAY 2 Saturday, October 4 th, :30 09:00 1 st IFKF Council Meeting 09:00 12:00 Plenary Session 2 and Discussion: Kidney care and public health agenda National initiatives 12:00 13:00 Guest lecture 3 14:00 16:00 Plenary Session 3: Fundraising and Marketing (Communication) 16:30 18:00 Plenary Session 4: World Kidney Day 18:00 18:30 Group photo 19:30 22:00 Diner La Cuvée DAY 3 Sunday, October 5th, :30 09:00 2 nd IFKF Council Meeting 09:00 10:30 Poster Session and Oral Presentations of the best Posters in each category 11:00 13:00 Plenary Session 5: Panel Discussion Living kidney donations 14:00 16:00 Plenary Session 6: IFKF Annual General Meeting 16:30 22:30 Social event and farewell dinner Awards Ceremony 16:30 : visit of Vieux Lyon 18:00 : river cruise 20:30 : diner Léon de Lyon DAY 4 Monday, October 6th, :30 09:00 3 rd IFKF Council Meeting 09:00 11:00 Plenary Session 7: Panel Discussion Setting-up Kidney Foundations in the Emerging World 11:00 11:30 Meeting highlights and Adjourn 15th IFKF Annual Meeting, Lyon / France 3 October 3 6, 2014

4 PROGRAM (as of September 27th 2014, subject to change) Thursday, October 2 nd, :00 19:00 Registration DAY 1 Friday, October 3 rd, :00 Registration :30 SESSION 1 WORKSHOPS JOINT SESSION FOR HEALTHCARE PROFESSIONALS AND PATIENTS Theme : Integrated kidney care 09:00 10:30 PLENARY SESSION 1 Chairs: Guillermo Garcia Garcia, Guadalajara (MEX) / Tom Oostrom, Amsterdam (NLD) 09:00 09:10 Welcome and Introduction - Guillermo Garcia Garcia, Guadalajara (MEX) 09: Worldwide epidemiology of chronic kidney disease - Bénédicte Stengel, Paris (FRA) 09:30 09:50 Implementation of screening programs - Mohammed Benghanem Gharbi, Casablanca (MAR) 09:50 10:10 A worldwide look on quality of life of CKD patients and Patient Centered Outcomes Research Elodie Speyer, Nancy (FRA) 10:10 10:30 Conservative and palliative kidney care Olivier Moranne, Nice (FRA) 10:30 11:00 Coffee Break :30 PARALLEL WORKSHOPS Workshop 1: Healthcare Professionals and Physicians Chairs: Joanne Kappel, Saskatoon (CAN) / Marianne Vennegoor, London (GBR) 11:00 11:20 Nutrition and exercise for prevention and treatment of CKD Philippe Chauveau, Bordeaux (FRA) 11:20 11:40 Patient s choice between modes of RRT in Europe Mark Murphy, Dublin (IRL) 11:40 12:00 Worldwide practice survey DOPPS Michel Jadoul, Brussels (BEL) 12:00-12:30 Panel discussion Workshop 2: Dialysis and Transplant Patients Forum (in collaboration with patient associations) Chairs: Yvanie Caillé, Paris (FRA) / Maria Fernanda Arce Amare, Mexico City (MEX) 11:00 11:20 Patient education and empowerment Raymond Merle, Grenoble (FRA) 11:20 11:40 Ethical considerations for healthcare organisations Sophie Favé, Lyon (FRA) 11:40 12:00 Report on: Etats Généraux du Rein (National Kidney Convention) Yvanie Caillé, Paris (FRA) 15th IFKF Annual Meeting, Lyon / France 4 October 3 6, 2014

5 12:00-12:30 Panel discussion 12:30 13:30 Opening Ceremony Maurice Laville, Lyon (FRA) Jean-Louis Touraine, City of Lyon François-Noël Gilly, Lyon University Dominique Deroubaix, Hospices Civils de Lyon Guillermo Garcia Garcia, IFKF President, Guadalajara (MEX) 13:30 14:30 KDIGO Lunch meeting (lunch boxes) Helping Patient Voices Influence Guidelines and Practices Around the World John Davis, Brussels (BEL) 14:30 16:00 MEETINGS OF KIDNEY FOUNDATIONS BY TYPE OF ORGANIZATION Attendees meet in three small groups to share their foundations' work. Each participant is asked to arrive prepared to share one success, one challenge and one innovation from his or her organization, followed by a discussion. Small groups will take their break when convenient. Chairs: Tom Oostrom, Amsterdam (NLD) / Anne Wilson, Melbourne (AUS) 16:00 16:30 Coffee Break Kidney Foundations from the developed world Facilitators : Tom Oostrom, Amsterdam (NLD)/ Anne Wilson, Melbourne (AUS) Kidney Foundations from emerging countries Facilitators : Maria Fernanda Arce Amare, Mexico City (MEX)/ Maria Bianchi, Chaco Province (ARG) Kidney Foundations that are treatment providers Facilitators : Ayse Onat / Timur Erk, Istanbul (TUR) 16:30 17:15 GUEST LECTURE 1 Chronic kidney disease in disadvantaged populations Lawrence Agodoa, Washington (USA) 17:15 18:00 GUEST LECTURE 2 WHO s work on diet, physical activity and NCDs in relation to the global voluntary targets Leo Nederveen, WHO, Geneva (CHE) Chairs: Wan Tin Lee, Petaling Jaya (MYS) / Christoph Wanner, Wurzburg (DEU) 19:00 20:00 Welcome Reception and Cocktail - Lyon City Hall, place de la Comédie, Lyon Room Anciennes Archives (J-L Touraine) 20:30 22:30 Dinner at La Maison Villemanzy (21 montée St Sébastien, Lyon) 15th IFKF Annual Meeting, Lyon / France 5 October 3 6, 2014

6 DAY 2 Saturday, October 4, :30 09:00 1 st IFKF Council Meeting (by invitation only) 08:00 Registration :00 PLENARY SESSION 2 DISCUSSION Theme : Kidney Care and Public Health Agenda National initiatives 09:00 10:30 PLENARY SESSION 2 Chairs: Michel Godin, Rouen (FRA) / Mark Murphy, Dublin (IRL) 09:00 09:30 Registries as decision supports for health agencies and politicians Christian Jacquelinet, Paris (FRA) 09:30 10:00 Promoting kidney care through European Kidney Health Alliance Norbert Lameire, Brussels (BEL) 10:00 10:30 Changing the public health agenda - Allan Collins, Minneapolis (USA) 10:30 11:00 Coffee Break 11:00 12:00 DISCUSSION Facilitators: Allan Collins, Minneapolis (USA) / Christian Jacquelinet, Paris (FRA) / Norbert Lameire, Brussels (BEL) 12:00 12:45 GUEST LECTURE 3 Kidney Foundations as promoters for research Pascal Houillier, Paris (FRA) Chair: Maurice Laville, Lyon (FRA) 13:00 14:00 Buffet Lunch 14:00 16:00 PLENARY SESSION 3 Theme : Fundraising and Marketing (Communication) Chairs: Tom Oostrom, Amsterdam (NLD) / Peter Storey, Peterborough (GBR) 14:00 14:30 The importance of a brand strategy Wouter Langeveld, Amsterdam (NLD) 14:30 15:15 Fundraising for Kidney Foundations in the developed countries - Peter Storey, Peterborough (GBR) 15:15 16:00 Fundraising for Kidney Foundations in the emerging countries Wan Tin Lee, Petaling Jaya (MYS) 16:00 16:30 Coffee Break 15th IFKF Annual Meeting, Lyon / France 6 October 3 6, 2014

7 16:30 18:00 PLENARY SESSION 4 Theme : World Kidney Day Chairs : Timur Erk, Istanbul (TUR) / Laszlo Rosivall, Budapest (HUN) 18:00 18:30 Group Photo WKD 2014 Review of activities WKD 2015 Preview future plans Guillermo Garcia Garcia, Guadalajara (MEX) / Paul Shay, Montreal (CAN) 19:30 23:00 Dinner at La Cuvée (angle of rue Sala and rue Auguste Comte, Lyon, phone ) 15th IFKF Annual Meeting, Lyon / France 7 October 3 6, 2014

8 DAY 3 Sunday, October 5, :30 09:00 2 nd IFKF Council Meeting (by invitation only) 08:00 Registration 9:00 10:30 POSTER SESSION AND ORAL PRESENTATIONS OF THE BEST POSTERS IN EACH CATEGORY Chairs: Michel Godin, Rouen (FRA) / Kamyar Kalantar-Zadeh, Irving (USA) Best Poster categories : World Kidney Day 2014 IFKF & Kidney Foundation Activities 09:50 10:30 Oral presentations of the best Posters in each category 10:30 11:00 Coffee Break 11:00 13:00 PLENARY SESSION 5 Panel discussion Theme : Living kidney donation Chairs: Kamyar Kalantar-Zadeh, Irving (USA) / Mitra Mahdavi, Teheran (IRN) 11:00 11:10 Opening Mitra Mahdavi, Teheran (IRN) 11:10 11:30 Ethical aspects of living related donor renal transplantation in emerging countries Gamal Saadi, Cairo (EGY) 11:30 11:50 Promotion of living kidney donation in developed countries Lionel Rostaing, Toulouse (FRA) 11:50 12:10 Searching living kidney donors by the internet, pro s and con s Martine Hommes, Amsterdam (NLD) 12:10 12:30 Social and cultural constraints on organ donation from a southern perspective - Mohamed Salah Ben Ammar, Tunis (TUN) 12:30 13:00 Panel discussion with the speakers 13:00 14:00 Buffet Lunch 14:00 16:00 PLENARY SESSION 6 IFKF Annual General Meeting 16:30 22:30 Social event and farewell dinner - Awards Ceremony 16:30 18:00 Visit of Vieux Lyon 18:00 20:00 River cruise 20:30 22:30 Diner at Brasserie Léon de Lyon (1 rue Pleney, Lyon, Phone : ) 15th IFKF Annual Meeting, Lyon / France 8 October 3 6, 2014

9 DAY 4 - Monday, October 6, :30-09:00 3 rd IFKF Council Meeting (by invitation only) 09:00 11:00 PLENARY SESSION 7 Panel discussion Theme : Developing low-cost replacement renal therapy and setting up Kidney Foundations in the emerging world Chairs: Ayla San, Ankara (TUR) Kidney foundations representatives from around the world report their experiences. Each presenter has a 10 min presentation, followed by a 15 min discussion A representative sample of Kidney Foundations around the globe Ethiopia National Kidney Foundation of Egypt - Gamal Saadi, Cairo (EGY) Low-cost hemodialisis in emerging countries - John Ball, Chicago (USA) / Donald Swendener, San Pedro Sula (HND) Burkina Faso: Adama Lengani, Ouagadoudou (Burkina Faso) 11:00 11:30 Meeting highlights and Adjourn 11:30 12:00 Coffee, drinks, and light lunch. 15th IFKF Annual Meeting, Lyon / France 9 October 3 6, 2014