The Positive Impact of an Annual Camp for Patients with a Cleft and the Staff that Care for Them Michelle G. Roy, PA-C

Transcription

1 The Positive Impact of an Annual Camp for Patients with a Cleft and the Staff that Care for Them Michelle G. Roy, PA-C Texas Children's Hospital Department of Surgery, Division of Plastic Surgery

2 Topic 1: Introduction to a Cleft Topic 2: TCH Cleft Team Topic 3: Development of a Cleft Camp Topic 4: Camp Keep Smiling and Its Impact on Patients and Staff

3 What is a Cleft The most common birth difference that occurs in the U.S., 1 in every 600 newborns are affected by a cleft lip and/or cleft palate Cleft Lip- is a separation of the upper lip and underlying muscle Cleft Palate- is a opening of the roof of the mouth where the palate did not fuse in utero xxx00.#####.ppt 4/10/19 10:36:59 AM

4 Timeline of Cleft Care Cleft care is extensive- most patients need a minimum of 3 surgeries to complete repair of cleft xxx00.#####.ppt 4/10/19 10:36:59 AM

5 Topic 1: Introduction to a Cleft Topic 2: TCH Cleft Team Topic 3: Development of a Cleft Camp Topic 4: Camp Keep Smiling and Its Impact on Patients and Staff

6 TCH Cleft Team At Texas Children's Hospital we have a multi-disciplinary Craniofacial Team involved with each of our patients cleft care At our cleft clinic families are able to meet with each specialist during a single appointment. Our specialist involved in your child s care include: Craniofacial Plastic Surgeon Otolaryngologist Speech and Language Pathologist Neuropsychologist Genetics Counselor Social Worker Team of APPs xxx00.#####.ppt 4/10/19 10:37:00 AM

7 Topic 1: Introduction to a Cleft Topic 2: TCH Cleft Team Topic 3: Development of a Cleft Camp Topic 4: Camp Keep Smiling and Its Impact on Patients and Staff

8 Development of a Cleft Camp In 2014 a hospital funded annual not-for-profit camp was started for our patients affected by a cleft called Camp Keep Smiling by Dr. Laura Monson Patients from the ages of 10 to 16 are invited to travel for the weekend to Camp For All in Burton, Texas free of charge The goal of camp has been to foster a safe environment that allows our patients to gain self-confidence while having the opportunity to make friends with individuals going through similar life experiences xxx00.#####.ppt 4/10/19 10:37:01 AM

9 Development of a Cleft Camp xxx00.#####.ppt 4/10/19 10:37:01 AM

10 Topic 1: Introduction to a Cleft Topic 2: TCH Cleft Team Topic 3: Development of a Cleft Camp Topic 4: Camp Keep Smiling and Its Impact on Patients and Staff

11 Camp Keep Smiling 2018 Campers participated in several activities to foster self-confidence and teamwork: xxx00.#####.ppt 4/10/19 10:37:03 AM

12 Camp Keep Smiling and Its Impact on Patients and Staff

13 Methods To assess the impact Camp Keep Smiling has on our patients and their families an online survey was disseminated one week following our spring 2018 camp asking about their experience Questions addressed included: likeliness of patient returning to camp in the future, likeliness of recommending camp to another family, and overall satisfaction with camp and our volunteers In addition, families were given the opportunity to comment on what specifically they liked or disliked about camp We had 19 families participate in the survey xxx00.#####.ppt 4/10/19 10:37:04 AM

14 Camp Keep Smiling and Its Impact on Patients and Staff Rating of Camp Keep Smiling Helpfulness of Camp Staff Poor Fair Good Very Good Excellent Poor Fair Somewhat Very Helpful Extremely Helpful Likeliness to Return to Camp Keep Smiling Very Unlikely Unlikely Neutral Likely Very Likely Likeliness to Recommend Camp Keep Smiling to Other Families Very Unlikely Unlikely Neutral Likely Very Likely xxx00.#####.ppt 4/10/19 10:37:04 AM

15 Camp s Impact on Patients and Staff I love everything there, Camp Keep Smiling is just an amazing place. It is like our second home. We are so grateful! My daughter loves to be around kids just like her. It builds her confidence and she feels known by who she is not because she looks different. We are so grateful! My daughter loves to be around kids just like her. It builds her confidence and she feels known by who she is not because she looks different. Seeing the campers arrive to check-in with already joyful and happy expressions make may day as a volunteer. I can see they were looking forward to this awesome weekend with TCH Plastic Surgery. I realize now that it really honors the name of Camp Keep Smiling. Congratulations to the whole team and dedicated individuals that make it a successful event. TCH Staff xxx00.#####.ppt 4/10/19 10:37:05 AM

16 Conclusion A majority of the respondents felt that camp had a positive impact on their child and would allow them to return in the future In addition to camper experience, our practice found that camp not only impacts the patients but the staff that care for them We conclude that this correlation will not only increase patient and family satisfaction, but overall fulfillment of our staff xxx00.#####.ppt 4/10/19 10:37:05 AM

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