97% Cases with all Primary Data Forms Returned 89% Cases with all Forms Returned and Queries Resolved
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1 February 28, 2007 Volume 8, Issue 2 Data Coordinating Centre: MIRU 7 th Floor, 790 Bay Street Toronto ON Canada M5G 1N8 macs@sw.ca; DATA CAMPAIGN A huge thank you to those of you who have sent us your data! We still need: Entry Booklets 7 Treatment Booklets - 21 Delivery Booklets - 25 Maternal Booklets - 25 Neonatal Booklets 32 97% Cases with all Primary Data Forms Returned 89% Cases with all Forms Returned and Queries Resolved CENTRES THAT HAVE REACHED 100% CASES WITH ALL PRIMARY DATA FORMS RETURNED AND ALL QUERIES RESOLVED Hospital LC Lagomaggiore, Mendoza Hospital Italiano, Buenos Aires Hospital Ramos Mejia, Buenos Aires Hospital Geral, Caxias do Sul Royal Alexandra Hospital, Edmonton IWK Health Centre, Halifax St Boniface General Hospital, Winnipeg Royal University Hospital, Saskatoon CHUS Fleurimont, Sherbrooke Children's & Women's Health Centre of BC, Vancouver North Bay General Hospital, North Bay Dr Everett Chalmers Regional Hospital, Fredericton Peace Maternity, Shanghai Universidad del Norte, Barranquilla Aarhus University, Aarhus CUB Benjamin Franklin, Berlin University of Marburg, Marburg St Hedwig Hospital, Regensburg Dr Horst-Schmidt-Kliniken, Wiesbaden TU Munchen, Munchen MHH Hannover, Hannover University of Debrecen, Debrecen Edith Wolfson, Holon Bnai Zion Medical Centre, Haifa Hadassah Ein Kerem, Jerusalem Poriya Government, Tiberias Sheba Medical Center, Ramat-Gan Islamic, Amman Hospital Nacional Cayetano Heredia, Lima Medical University of Gdansk, Gdansk Research Centre of Obs, Gyn & Perinatology, Moscow Research Institute, Ivanovo University Women's Hospital, Basel CHU Vaudois, Lausanne University Hospital, Zurich Academisch Ziekenhuis, Maastricht Atrium Medical Center, Heerlen Royal Free, London The Queen Elizabeth Hospital, King's Lynn University of Illinois, Chicago Bethesda, Cincinnati Baystate Medical Center, Springfield Albany Medical Center, Albany Winthrop, Mineola Please remember to answer your queries as soon as possible! Queries are ongoing.
2 Page 2 of 4 MACS Primary Data Report Forms Returned and Queries Resolved (Entry, Treatment, Delivery, Maternal, Neonatal) Country Centre # Patients % Cases with all % Cases with all Forms Recruited Forms Returned returned and Queries Resolved ARGENTINA BOLIVIA BRAZIL CANADA CHILE CHINA COLOMBIA DENMARK GERMANY Hospital Penna, Bahia Blanca % 94% Hospital Posadas, Buenos Aires 60 96% 86% Hospital JR Vidal, Corrientes 44 95% 45% Hospital Ramon Carrillo, Santiago del Estero % 97% Hospital LC Lagomaggiore, Mendoza % 100% Congratulations! Hospital Sarda, Buenos Aires % 86% Hospital Angela Iglesia de Llano, Corrientes % 94% Hospital Italiano, Buenos Aires % 100% Congratulations! Hospital JM Cullen, Santa Fe 6 100% 66% Hospital Ramos Mejia, Buenos Aires 5 100% 100% Congratulations! Hospital Italiano de La Plata, La Plata 3 66% 66% Hospital Fiorito, Avellaneda 2 100% 0% Instituto de Salud Reproductiva/UDIME, Santa Cruz 14 64% 57% Hospital Geral, Caxias do Sul 8 100% 100% Congratulations! UFSC, Florianopolis 8 100% 50% Maternidade Escola da UFRJ, Rio de Janeiro 5 100% 80% Hospital Materno Infantil, Goiania 4 100% 0% Mount Sinai Hospital, Toronto % 89% Royal Alexandra Hospital, Edmonton % 100% Congratulations! IWK Health Centre, Halifax % 100% Congratulations! St Boniface General Hospital, Winnipeg % 100% Congratulations! Regina General Hospital, Regina % 96% Royal University Hospital, Saskatoon % 100% Congratulations! CHUS Fleurimont, Sherbrooke % 100% Congratulations! Children's & Women's Health Centre of BC, Vancouver % 100% Congratulations! Sunnybrook Health Sciences Centre, Toronto 20 95% 75% North Bay General Hospital, North Bay % 100% Congratulations! Dr Everett Chalmers Regional Hospital, Fredericton 7 100% 100% Congratulations! Sotero del Rio, Puente Alto 92 94% 78% Universidad Catolica, Santiago % 87% Hospital Clinico San Borja Arriaran, Santiago 23 91% 82% Peace Maternity, Shanghai 4 100% 100% Congratulations! CEMIYA, Cali 85 98% 81% Universidad del Norte, Barranquilla 6 100% 100% Congratulations! Aarhus University, Aarhus % 100% Congratulations! Klinikum Nurnberg Sud, Nurnberg % 94% CUB - Benjamin Franklin, Berlin % 100% Congratulations! University of Marburg, Marburg % 100% Congratulations! Helios Klinikum, Erfurt 13 92% 76%
3 Page 3 of 4 Country Centre # Patients % Cases with all % Cases with all Forms Recruited Forms Returned returned and Queries Resolved HUNGARY ISRAEL JORDAN PERU POLAND St Hedwig Hospital, Regensburg 7 100% 100% Congratulations! Dr Horst-Schmidt-Kliniken, Wiesbaden 5 100% 100% Congratulations! University of Leipzig, Leipzig 5 100% 80% University Women's Hospital, Homburg 5 100% 80% TU Munchen, Munchen 3 100% 100% Congratulations! Bonn University, Bonn 1 0% 0% MHH Hannover, Hannover 1 100% 100% Congratulations! University of Debrecen, Debrecen % 100% Congratulations! Haemek, Afula % 96% Rabin Medical Center, Petach Tikva % 83% Edith Wolfson, Holon % 100% Congratulations! Ma'ayney HaYeshua Medical Center, Bnei Brak 32 96% 81% Meir Medical Center, Kfar-Saba % 88% Soroka, Beer Sheva 15 93% 86% Bnai Zion Medical Center, Haifa % 100% Congratulations! Hadassah Ein Kerem, Jerusalem 4 100% 100% Congratulations! Poriya Government, Tiberias 3 100% 100% Congratulations! Sheba Medical Center, Ramat-Gan 2 100% 100% Congratulations! Islamic, Amman % 100% Congratulations! Hospital Nacional Cayetano Heredia, Lima 2 100% 100% Congratulations! University School of Medical Sciences, Poznan % 82% Polish Mothers Memorial Hospital, Lodz 66 93% 93% Medical University of Gdansk, Gdansk % 100% Congratulations! RUSSIAN FEDERATION Research Centre of Obs, Gyn & Perinatology, Moscow % 100% Congratulations! SPAIN SWITZERLAND THE NETHERLANDS UK USA Research Institute, Ivanovo 3 100% 100% Congratulations! University of Barcelona Hospital Clinic, Barcelona % 95% University Women's Hospital, Basel % 100% Congratulations! CHU Vaudois, Lausanne 9 100% 100% Congratulations! University Hospital, Zurich 4 100% 100% Congratulations! Academisch Ziekenhuis, Maastricht 8 100% 100% Congratulations! Atrium Medical Center, Heerlen 1 100% 100% Congratulations! Diana, Princess of Wales, Grimsby 4 100% 50% Royal Free, London 2 100% 100% Congratulations! The Queen Elizabeth Hospital, King's Lynn 2 100% 100% Congratulations! Montefiore Medical Center, Bronx 27 88% 85% University of Illinois, Chicago 7 100% 100% Congratulations! Bethesda, Cincinnati 5 100% 100% Congratulations! Baystate Medical Center, Springfield 2 100% 100% Congratulations! Good Samaritan Hospital, Cincinnati 2 50% 50% Albany Medical Center, Albany 1 100% 100% Congratulations! Winthrop, Mineola 1 100% 100% Congratulations! Total: % 89 %
4 Page 4 of MONTH FOLLOW-UP Calculating the corrected age (if required) for the Bayley-II assessments Remember to correct the age ONLY if the child was born at <37 weeks. The EDC (Estimated Date of Confinement) is provided for any child whose age needs to be corrected for prematurity. Please use the EDC that we provide you on the Contact Reminders: Patient ID Mom's DOB Enrolled Date Delivery Date EDC * Current Age (month) Corrected /12/ /01/ /09/ /12/18 EDC (Estimated Date of Confinement) is for the Bayley assessor to use on the assessment day to correct for prematurity. Please forward this information to the assessor. Here are 2 examples on how to calculate the corrected age based on the information above: Patient # : The EDC = 2004/01/11 Delivery Date = 2003/12/17 The gestational age of the child at birth was 36 weeks and 2 days. If the child was being assessed on 2005/11/13: Chronological age = 22 months and 26 days Corrected age = 22 months and 2 days Patient # : The EDC = 2004/12/18 Delivery Date = 2004/09/28 The gestational age of the child at birth was 28 weeks and 3 days. If this child was being assessed on 2006/11/15: Chronological age = 25 months and 17 days Corrected age = 22 months and 27 days Please remember that 1 month = 30 days for the calculation.
5 18-24 Month Follow-up of MACS Babies The MACS Month Follow-up is displayed in the following table. Centres are listed according to the total number of recruits by country. See below for the number of follow-up assessments performed by your centre! Let's aim for 100% follow-up for 2003, 2004 & 2005!! Status Totals As of February 2007 COUNTRY ARGENTINA CANADA POLAND ISRAEL CHILE GERMANY COLOMBIA HUNGARY USA DENMARK SWITZERLAND BRAZIL SPAIN RUSSIAN FEDERATION JORDAN BOLIVIA THE NETHERLANDS UK CHINA PERU Total % 90.9% 82.9% 68.0% 7.9% 50% CENTRES BY COUNTRY (Shaded area is prior to start-up) ARGENTINA Hospital Penna, Bahia Blanca Hospital Posadas, Buenos Aires Hospital JR Vidal, Corrientes Hospital Ramon Carrillo, Santiago del Estero Hospital LC Lagomaggiore, Mendoza Hospital Sarda, Buenos Aires Hospital Angela Iglesia de Llano, Corrientes Hospital Italiano, Buenos Aires Hospital JM Cullen, Santa Fe 6 6 Hospital Ramos Mejia, Buenos Aires 5 5 Hospital Italiano de La Plata, La Plata 3 3 Hospital Fiorito, Avellaneda CANADA Mount Sinai Hospital, Toronto Royal Alexandra Hospital, Edmonton IWK Health Centre, Halifax St Boniface General Hospital, Winnipeg Royal University Hospital, Saskatoon Regina General Hospital, Regina CHUS Fleurimont, Sherbrooke Children's & Women's Health Centre of BC, Vancouver Sunnybrook Health Sciences Centre, Toronto North Bay General Hospital, North Bay Dr Everett Chalmers Regional Hospital, Fredericton POLAND Univ School of Medicine, Poznan Polish Mothers Memorial Hospital, Lodz Medical University of Gdansk, Gdansk ISRAEL Haemek, Afula Rabin Medical Center, Petach Tikva Edith Wolfson, Holon Ma'ayney HaYeshua Medical Center, Bnei Brak Meir Medical Center, Kfar-Saba Soroka, Beer Sheva Bnai Zion Medical Center, Haifa Hadassah Ein Kerem, Jerusalem Poriya Government, Tiberias Sheba Medical Center, Ramat-Gan 2 2 CHILE Sotero del Rio, Puente Alto Universidad Catolica, Santiago
6 Status Totals As of February 2007 Hospital Clinico San Borja Arriaran, Santiago GERMANY Klinikum Nurnberg Sud, Nurnberg CUB - Benjamin Franklin, Berlin University of Marburg, Marburg Helios Klinikum, Erfurt St Hedwig Hospital, Regensburg University of Leipzig, Leipzig Dr Horst-Schmidt-Kliniken, Wiesbaden University Women's Hospital, Homburg TU Munchen, Munchen Bonn University, Bonn 1 1 MHH Hannover, Hannover COLOMBIA CEMIYA, Cali Universidad del Norte, Barranquilla 6 6 USA Montefiore Medical Center, Bronx University of Illinois, Chicago Bethesda, Cincinnati Good Samaritan Hospital, Cincinnati Baystate Medical Center, Springfield Albany Medical Center, Albany 1 1 Winthrop, Mineola 1 1 HUNGARY University of Debrecen, Debrecen DENMARK Aarhus University, Aarhus SWITZERLAND University Women's Hospital, Basel CHU Vaudois, Lausanne University Hospital, Zurich BRAZIL UFSC, Florianopolis 8 8 Hospital Geral, Caxias do Sul Maternidade Escola da UFRJ, Rio de Janeiro 5 5 Hospital Materno Infantil, Goiania 4 4 SPAIN University of Barcelona Hospital Clinic, Barcelona RUSSIAN FEDERATION Research Centre of Obs, Gyn & Perinatology, Moscow Research Institute, Ivanovo JORDAN Islamic, Amman BOLIVIA Instituto de Salud Reproductiva/UDIME, Santa Cruz THE NETHERLANDS Academisch Ziekenhuis, Maastricht Atrium Medical Center, Heerlen UK Diana, Princess of Wales, Grimsby 4 4 The Queen Elizabeth Hospital, King's Lynn Royal Free, London CHINA Peace Maternity, Shanghai PERU Hospital Nacional Cayetano Heredia, Lima 1 1 2
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