PRE-MEETING Case and cohort preparation seminar: Data base, organizational structure and scientific project design February 2018: 14 (Wednesday - noon) to 15 (Thursday - noon) Meeting Venue: seminar room 3, room number: 601 Dr. von Haunersches Kinderspital, Goethestr. 72, 80337 Munich Agenda (14 th / 15 th Feb 2018) Wednesday PART I 13:00 to 19:00h TIME TOPIC Presenter 13:00 13:30h Get laptops and computer ready and logged in All 13:30 13:45h 13:45 14:15h European Management Platform for child Brief history, overview and goals child-eu register practical demonstration Overview on how to upload, work with and retrieve data from database 14:15 15:30h Break with Snacks 15:30 16:30h 17:30 18:30h Practical register work hands on New patients and those to complete, upload imaging Practical register work hands on Send messages, communicate, submit biomaterials Seidl, Wesselak Seidl 18:30 19:00h Junk food and beer Thursday PART II 08:30 to 14:00h TIME TOPIC Presenter 08:30 9:00h 9:00 11:00h Elements of a successful clinician-scientist Structured discussion and output generation Envisioning and preparation of clinical and translational child projects *Presentation of participants ideas ** All 11:00 11:30h Short Coffee Break / Snack 11:30 13:00h Get ready Last preparations to have cases updated Seidl, Schieber, Wesselak 13:00 14:00h Lunch Break / Buffett (lecture hall, Lindwurmstr. 4; 2.floor) *Trainer 1
Agenda (15 th Feb 2018) Thursday 13:00 to 20:15h TIME TOPIC Presenter Review team* 13:00 14:00h Lunch Break / Buffett / Welcome 14:00 14:20h European Management Platform for child Brief history, overview and goals 14:20 14:30h Obituary Prof. Goldbeck 14:30 15:00h 15:00 15:40h Rare Diseases: Big Insights into Lung Development Moderator for time and structure: Bush*, London Deutsch*, Seattle 20 min total Case #1 (Pat-ID) DE-H-0010 Carlens, Hannover 20 min total Case #2 (Pat-ID) TR-ANK-HAC-0038 Emiralioglu*, Ankara 15:40 16:00h Coffee Break / Snack (Group photo) Wölke 16:00 17:00h Moderator for time and structure: Bush*, London 20 min total Case #3 (Pat-ID) TR-ANK-HAC-0033 Gharibzadeh Hizal, Ankara 20 min total Case #4 (Pat-ID) TR-ANK-HAC-0004 Sismanlar*, Ankara 20 min total Case #5 and 6 (Pat-ID) please register Devaney, Nothingham 17:00 17:30h 17:30 18:00h Snack 18:00 18:45h s News for experts: SFTPC News for experts: COPA HCQ4Surf project meeting (E-Rare) HCQ in child an European Investigator Initiated randomized clinical trial, update administration (short status per country-all), next steps, time schedules, discussion 18:45 20:15h Management committee meeting COST Epaud*, Paris Eismann*, Munich All E-Rare participants (PIs and SIs) Snijders*, Padova MC members Schwerk*, Hannover Krenke*, Warsaw Lange*, Warsaw Kiper*, Ankara Cunningham*, 2
Agenda (16 th Feb 2018) Friday 08:30 to 19:00 and from 20:00 TIME TOPIC Presenter Review team* 8:30 9:00h 9:00 10:00h Classification approaches and problems in adult ILD Moderator for time and structure: Cunningham*, Behr*, Munich 20 min total Case #7 (Pat-ID) please register Iglesias, Barcelona 20 min total Case #8 (Pat-ID) please register Richard, Paris 20 min total Case #9 (Pat-ID) please register Berdah, Paris 10:00 10:30h 10:30 11:30h Coffee Break / Snack Moderator for time and structure: Cunningham*, 20 min total Case #10 (Pat-ID) please register Koucky, Prague 20 min total Case #11 (Pat-ID) please register Proesmans*, Leuven 20 min total Case #12 (Pat-ID) TR-ANK-0007 Cobanoglu*, Ankara 11:30 12:00h 12:00 14:00h 14:00 14:30h 14:30 15:30h s News for experts: FLNA News for experts: ACTA2 Lunch Break / Buffett / Interaction / Poster presentation (8 cases) The 100 forms of Alveolar proteinosis diagnosis and treatment Moderator for time and structure: Griese, Munich Moreno*, Barcelona Papiris*, Athens 20 min total Case #13 (Pat-ID) please register Manali, Athens 20 min total Case #14 (Pat-ID) please register Terhegen-Largo*, Amsterdam Bush*, London Moreno*, Barcelona Deutsch*, Seattle Ley*, Munich Buchvald*, Papiris*, Athens Proesmans*, Leuven Proesmanns*, Leuven 3
20 min total Case #15 (Pat-ID) please register Willemse; Groningen 15:30 16:00h Coffee Break / Snack 16:00 17:30h Overarching working group - classification Classification in child and ILD Panel discussion with pathologists, clinicians, and radiologists All clinicians Pathologists* Radiologists* 17:30 19:00h Progress and Business COST project (7 min each) WG1, WG2, WG3, WG4, WG5, WG6, web-site, training school, CRC, ELF, HCQ4 Epaud*,Paris Snijder*, Padova Buchvald*, Kiper*, Ankara Bush*, London Go to get together 19:30 Food, beer and talking Seminar room 3, room number: 601 (6. Floor) Goethestr. 72, 80337 Munich All all Posterwalk 12:00 to 14:00h 12:00 14:00h Poster presentation Author P-Case #1 TR-ANK-GAZ-0001 Sismanlar, Ankara P-Case #2 TR-ANK-GAZ-0003 Sismanlar, Ankara P-Case #3 SPC mutation Lombardi, Florence P-Case #4 Please name your case Pijnenburg, Rotterdam P-Case #5 Twins Bas, Istanbul P-Case #6 P-Case #7 P-Case #8 The Posters will be displayed during the entire meeting from Thursday 1pm until Saturday 1pm We have several very interesting back-up cases, as we expect that we will not need 20 min for each presentation. DO NOT use time at the expense of your colleagues, rather share it whenever possible! Back up cases Moderator for time and structure: 20 min total Case #23 and 24 (Pat-ID) Saianda, Lisbon 20 min total Case #25 (Pat-ID) Lombardi, Florence 20 min total Case #26 (Pat-ID) Papary, London 20 min total Case #27 (Pat-ID) GOUBAU, Bruessels 20 min total Case #28 (Pat-ID) Carlens, Hannover 4
Agenda (17 th Feb 2018) Saturday 09:00 to 13:00h TIME TOPIC Presenter Review team 9:00 9:30h 9:30 10:30h Radiology Ground glass opacification: what is it, how to recognize and differential diagnosis Moderator for time and structure: Proesmans*, Leuven 20 min total Case #16 (Pat-ID) please register 20 min total Case #17 (Pat-ID) please register 20 min total Case #18 and 19 (Pat-ID) PI-W-0030 and please register 10:30 11:00h Coffee Break / Snack 10:30 11:30h Moderator for time and structure: Proesmans*, Leuven Ley*, Munich Kloostermann, Rotterdam Buchvald*, Boguslawski, Marczak,Warsaw 20 min total Case #20 (Pat-ID) Mirra, Rome 20 min total Case #21 (Pat-ID) Bas*, Istanbul 20 min total Case #22 (Pat-ID) 11:30 12:00h A must: Mutation nomenclature describing variants 12:00 13:00h Lunch Break / Buffett Safe travel home Epaud*, Paris Sofeso*, Munich Snijders*, Padova Krenke*, Warsaw, Lange*, Warsaw Bas, Istanbul Terhegen- Largo*,Amsterdam Lombardi, Florence Buchvald, 5