Research forum on chronic kidney disease
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- Gwendoline Opal Fitzgerald
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1 Research forum on chronic kidney disease Wednesday 23rd August and Thursday 24 th August 2017 South Australian Health and Medical Research Institute (SAHMRI) Adelaide, South Australia
2 Introduction and Contents Time and Date: Wednesday 23rd August and Thursday 24th August 2017 Venue: South Australian Health and Medical Research Institute (SAHMRI), Adelaide, South Australia Cost: Free registration (inclusive of catering). Outline This national meeting is for patients, clinicians, and researchers with an interest in conducting and implementing research to improve outcomes for people with chronic kidney disease. The forum provides a unique opportunity to hear and discuss innovative methods, high-priority research projects, and to meet potential collaborators. This will focus on research into chronic kidney disease, facilitated by infrastructure to support these activities in Australia and New Zealand including the: Australasian Kidney Trials Network (AKTN) Australia and New Zealand Dialysis and Transplant Registry (ANZDATA) Kidney Health Australia Caring for Australasians with Renal Impairment (KHA-CARI) Guidelines Cochrane Kidney and Transplant Who can attend? This meeting is open to all health professionals working in the area of kidney disease including nephrologists, nurses, dieticians, social workers, psychologists, physiotherapists and other disciplines - with a research interest in patients with kidney disease. This meeting is also open to consumers with CKD (patients or caregivers), policy makers and industry. A confirmation will be sent to attendees. Meeting objectives The goals of the forum are: To build capacity in clinical and population health research applied to CKD To facilitate enhanced multidisciplinary collaboration To promote the understanding and uptake of new methods To develop a shared research agenda among all relevant stakeholders, especially patients and their caregivers Version th August
3 Outline of Program* The program is subject to change and will be updated as speaker/topics are confirmed. DAY 1: WEDNESDAY 23 RD AUGUST 2017 Time Session 9:00 am Registration and coffee 9:30 am Welcome: BEAT-CKD Research Forum Prof Stephen McDonald 9:35 am SESSION 1: INNOVATION IN EVIDENCE AND DATA Chair: A/Prof Allison Tong 10:20 am Morning tea Living evidence A/Prof Julian Elliott Machine learning Prof Jean Yang Panel discussion 10:40 am SESSION 2: MEASUREMENT IN CKD Chair: Armando Teixeira-Pinto Nominal group technique to identify and explain patient priorities Camilla Hanson How to generate and evaluate clinical core outcome measures Dr Andrea Viecelli Patient-reported outcome measures Angela Ju Measuring cognitive function in patients with CKD: why it matters and what to consider Anita Van Zwieten Measuring early kidney disease in children Dr Nick Larkins 11:20 am SESSION 3: EXPOSURES AND COMPLICATIONS IN CKD Chair: Dr Shilpa Jesudason Food and nutrients Valeria Saglimbene KidneyTEXT e-health to improve diet in CKD Jess Stevenson Cancer screening Laura James Cancer Dr Anna Francis 11:50 am SESSION 4: ENGAGING THE INDIGENOUS COMMUNITY IN CKD RESEARCH Chair: Shilpa Jesudason 12:40 pm Lunch Antecedents of renal disease in Aboriginal and non-aboriginal children (ARDAC) Lindsay Hardy KHA-CARI: engaging community in developing guidelines Donisha Duff 12:45 pm BEAT-CKD Post-graduate/Early Career Research Network Launch (by invitation) 1:30 pm SESSION 5: THE BIG (DATA) PICTURE Chair: Prof Stephen McDonald What is possible with observational research? Dr Lyle Palmer 2:15 pm Registry based trials update Prof Stephen McDonald & A/Prof Carmel Hawley 2:35 pm Afternoon tea 2:50 pm SESSION 6: KIDNEY TRANSPLANTATION ARE WE GETTING IT RIGHT? Chair: Prof Stephen McDonald & Dr Philip Clayton Part 1: Developing an Evidence Base for Organ Allocation Policy Version th August
4 Current state Dr Philip Clayton EPLET matching to reduce de novo DSAs Dr Ankit Sharma Donor-recipient matching algorithms Vaishnavi Calisi Simulating current and future allocations Aarti Gulyani 4:00 pm Part 2: Getting the Framework Right 5.00 pm Forum Close Current waitlisting practices Dr Matthew Sypek Waitlisting in indigenous patients Prof Stephen McDonald Beyond the experts what do the community think about allocations? Dr Martin Howell Ethical dimensions of current and future practice Drew Carter DAY 2: THURSDAY 24 TH AUGUST 2017 Time Session 8:15 am BEAT-CKD Business Meeting 9:15 am Registration and coffee 9:30 am SESSION 7: ATKN SESSION Chair: Prof David Johnson Platform Trials: A model for integrated research and healthcare improvement Steve Webb 10:15 am SWAT (studies within a trial) - embedded research Elaine Pascoe 11:00 am Morning tea am SESSION 8: TRIAL PROPOSALS Chair: A/Prof Carmel Hawley Trial Proposal 1 IMPEDE-PKD Trial Dr Andrew Mallett 12:00 pm Trial Proposal 2 A linkage study to define the perioperative outcomes of patients on renal replacement therapy Dr Menaan Palumuthusingam pm Trial Proposal 3 1:00 pm Lunch A symptom management trial: post-dialysis fatigue Dr Matthew Roberts 2:00 pm SESSION 9: CONSUMER ENGAGEMENT Chair: Prof Stephen McDonald Framework for consumer engagement Kathy Mott 2:30 pm Beat CKD workshop report Prof Stephen McDonald & Dr Martin Howell 3:00 pm KHA and consumer representation Dr Shilpa Jesudason 3:30 pm Panel discussion: ways forward to improve consumer engagement 4:00 pm Forum Close Version th August
5 Attendee List First name Surname Affiliation Michael Bartlett Amelie Bernier-Jean University of Sydney / Centre for Kidney Research Vaishnavi Calisa University of Sydney Katrina Campbell Princess Alexandra Hospital / Bond University Drew Carter The University of Adelaide Swasti Chaturvedi Royal Darwin Hospital Yeoungjee Cho Princess Alexandra Hospital / AKTN Phil Clayton ANZDATA Registry Margie Conley Princess Alexandra Hospital Ian Cornell PKD Foundation of Australia Judy Cornell PKD Foundation of Australia Kathryn Dansie SAHMRI Jacqueline Dennis Kidney Health Australia / SA Kidney Club Donisha Duff Kidney Health Australia Paula Dunn The George Institute for Global Health Julian Elliott Cochrane Australia Magid Fahim AKTN/University of Queensland Anna Francis Children's Health Queensland Jonathan Gleadle Flinders University Basu Gopal CNARTS, Royal Adelaide Hospital Nicholas Gray Sunshine Coast University Hospital Carmel Gregan-Ford KHNZ Aarti Gulyani ANZDATA Registry Talia Gutman University of Sydney Derick Halaliku Monash University Camilla Hanson Centre for Kidney Research Lindsay Hardy Centre for Kidney Research Carmel Hawley Princess Alexandra Hospital / AKTN Martin Howell The University of Sydney Kylie Hurst ANZDATA Registry Shariful Islam The George Institute for Global Health / The University of Sydney Laura James University of Sydney Meg Jardine Concord Repatriation General Hospital /The George Institute Shilpa Jesudason Royal Adelaide Hospital David Johnson Metro South and Ipswich Nephrology & Transplant Service / Princess Alexandra Hospital Angela Ju The University of Sydney Marianne Kerr The Centre for Kidney Research / Children's Hospital at Westmead Maleeka Ladhani The University of Sydney / Lyell McEwin Hospital Kelly Lambert University of Wollongong Nicholas Larkins Centre for Kidney Research / Princess Margaret Hospital Paul Lawton Menzies School of Health Research Richard Le Leu CNARTS, RAH Jonathan Ling Monash Medical Centre Pamela Lopez-Vargas Centre for Kidney Research Version th August
6 Marie Ludlow Kidney Health Australia Andrew Mallett Royal Brisbane & Women's Hospital Stephen McDonald ANZDATA Registry Charlotte McKercher Menzies Institute for Medical Research / University of Tasmania Anthony Meade CNARTS Robyn Montgomery Royal Hobart Hospital Harry Moody SCGH Kathy Mott SAHMRI Shyamsundar Muthuramalingam Flinders University Jade Newman The George Institute for Global Health Dharmenaan Palamuthusingam Princess Alexandra Hospital / University of Queensland Lyle Palmer The University of Adelaide Elaine Pascoe AKTN Roberto Pecoits-Filho PUCPR, Brazil Kevan Polkinghorne Monash Medical Centre/Monash University Nitesh Rao Lyell McEwin Hospital Donna Reidlinger AKTN Matthew Roberts Eastern Health/Monash University Hannah Robert-Tissot University of Tasmania Valeria Saglimbene The University of Sydney Ankit Sharma Centre for Kidney Research Brendan Smyth The George Institute for Global Health Jessica Stevenson Centre for Kidney Research/The University of Sydney/St George Hospital Matthew Sypek ANZDATA Registry Armando Teixeira-Pinto The University of Sydney Allison Tong The University of Sydney Hanh Tran Royal Adelaide Hospital Shahid Ullah ANZDATA Anita van Zwieten The University of Sydney / Centre for Kidney Research Andrea Viecelli University of Queensland Steve Webb The George Institute for Global Health Angela Webster The University of Sydney Roger Wyndham Concord Hospital Jean Yang The University of Sydney Gigi Yeung St George Hospital Version th August
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