INTERNATIONAL REGISTRY IN ORGAN DONATION AND TRANSPLANTATION
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1 IRODAT INTERNATIONAL REGISTRY IN ORGAN DONATION AND TRANSPLANTATION Maria Paula Gómez 1, Blanca Pérez 1, Martí Manyalich Donation & Transplantation Institute, Barcelona 2 Hospital Clínic i Provincial, Barcelona
2 1. BRIEF IRODAT HISTORY Worldwide donation and transplantation data since 1998 Information available directly through the webpage Statistics from more than 91 courtiers Open-data & Free
3 2. IRODAT WORKFLOW IRODaT Official Reporters Ministries of Health National Transplant Organizations Main Hospitals Scientific researchers & Medical community IRODaT Governments and institutions General society * The reporters are the responsible persons for the data
4 2. IRODAT WORKFLOW (II) Data validation is made into 3 different steps 1. When the information is received, it is automatically checked through IRODaT validation rules 2. Later on, the data is checked by a group of experts from IRODaT staff 3. Finally, when some inconsistence number is detected, IRODaT contact again with the Official Reporter in order to confirm it IRODaT produce personalized reports under demands
5 3. IRODAT WEBSITE Availability of the country statistics on one click
6 3. IRODAT WEBSITE (II) It is possible also to consult the number, not only the rate
7 4. DATA DEFINITION IRODaT uses the variables defined in the article The critical pathway for deceased donation in order to provide a common systematic approach to the deceased organ donation community
8 Croatia Spain Belgium Malta Puerto Rico USA France Estonia Portugal Norway Slovenia Austria Italy Finland Czech Rep. Lativa UK Ireland Uruguay Poland Argentina Netherlands Sweden Canada Hungary Lithuania Denmark Slovak Rep. Germany Brazil Switzerland Belarus Colombia Iceland Chile South Korea Luxembourg Israel Hong Kong Greece Panama Iran Taiwan* Cyprus Venezuela Turkey Ecuador Mexico Romania Costa Rica Saudi Arabia Russia Lebanon Trinidad & Tob. Dom. Rep. Malaysia Ukraine* Bulgaria Philippines Tunisia Morocco* 2 1,8 0,9 0,5 0,1 0,09 5,8 4,7 4,5 4,5 3,7 3,5 3,4 3,2 3,1 2,9 2,5 9 8,6 8,4 7,9 7,3 7,2 7 6,9 6, ,5 16,1 15,7 15,6 15, ,7 14,3 13,7 13,4 13,1 12,8 12, ,1 1 9,3 19,9 19, ,3 26,3 25,6 24,9 24, , ,5 22, ,9 36,5 35, Worldwide Actual Deceased Organ Donors 2012 (pmp) *2011 data
9 Asia - Oceania Actual Deceased Organ Donors 2012 (pmp) 15,6 15,1 8,6 8,6 South Korea 7,2 8, Hong Kong 4,7 7,2 Malaysia 0,9 0,9 Philippines Taiwan 5,
10 Turkey South Korea Netherlands Costa Rica Saudi Arabia Lebanon Iran Taiwan* Iceland Sweden UK Mexico Norway USA Israel Canada Denmark Switzerland Tunisia Germany Trinidad & Tob. Brazil Spain Belgium Austria Argentina Ireland Hong Kong Czech Rep. France Italy Venezuela Hungary Azerbaijan Sudan Panama Portugal Macedonia Lithuania Romania Greece Georgia Armenia Malta Croatia Belarus Libya Dom. Rep. Lativa Russia Finland Colombia Philippines Nicaragua Malaysia Ukraine* Poland Estonia Ecuador Bulgaria Moldova Uruguay Puerto Rico Slovak Rep. Singapore Morocco* ,8 2,7 2,5 2, ,9 1,8 1,8 1,7 1,7 1,7 1,7 1,6 1,2 0,9 0,8 0,5 0,4 4 3,8 3,7 3,3 3,3 7 6,8 6,8 5,7 5,4 5,3 5,3 5 4,9 4,6 4,5 4,5 22, ,1 19,8 18,6 17,2 16,9 16,8 16,3 15,4 14,6 14,6 14,1 13,5 12,9 12,6 11,3 10,8 10,4 9,2 8,4 8,2 8 7,7 7,7 25,8 29,3 40,1 43, Worldwide Living Organ Donors 2012 (pmp) *2011 data
11 Asia - Oceania Living Organ Donors 2012 (pmp) South Korea 37,1 40,1 14,1 12,9 14,7 10,8 11, Hong Kong 6,8 7,3 Philippines 1,9 Malaysia 1,8 Singapore 0,55 0,58 Taiwan 19,
12 Donors After Cardiac Death -DCD- 2012(pmp) Latvia UK Netherlands Belgium Spain Canada France Russia Switzerland Ireland Austria Czech Rep Romania Italy Mexico 0,9 0,875 0,7 0,5 0,5 0,16 0,1 0,02 2,1 1,9 3,4 3,4 6,3 7,4 7,9 11,
13 Croatia Spain Estonia Norway Belgium Austria France Portugal Lativa Finland USA Czech Rep. Slovenia Uruguay UK Netherlands Poland Ireland Hungary Italy Sweden Lithuania Argentina Denmark Slovak Rep. Puerto Rico Germany Malta Canada Brazil Switzerland Belarus Colombia South Korea Panama Iran Hong Kong Greece Venezuela Chile Taiwan* Israel Romania Luxembourg Turkey Ecuador Mexico Russia Costa Rica Saudi Arabia Lebanon Malaysia Dom. Rep. Trinidad & Tob. Moldova Bulgaria Ukraine* Singapore Philippines Tunisia Morocco* 3 2,9 2,3 2 1,5 1,2 0,5 0,5 0,5 0,1 12,9 12, ,8 11,4 11,2 10,5 9,1 8,9 7,9 6,9 6,1 6 5,2 5,2 4, ,7 20,5 19,5 18,2 16,8 15, ,4 28,9 28,7 28,6 27,6 26,7 26,7 25,5 25,3 24,6 24, ,2 36, ,7 34,1 33,4 43,9 43,7 43,6 42, ,5 53,8 60 Worldwide Kidney Transplant from Deceased Donors 2012 (pmp)
14 Turkey Netherlands Costa Rica Lebanon South Korea Iran Saudi Arabia Iceland Mexico UK Sweden Norway USA Israel Denmark Canada Switzerland Macedonia Tunisia Germany Trinidad & Spain Brazil Austria Argentina Ireland Czech Rep. France Hungary Belgium Azerbaijan Sudan Panama Portugal Lithuania Greece Venezuela Georgia Armenia Italy Malta Taiwan* Romania Belarus Dom. Rep. Lativa Hong Kong Croatia Finland Philippines Colombia Nicaragua Malaysia Estonia Ecuador Ukraine* Russia Poland Bulgaria Moldova Uruguay Puerto Rico Slovak Rep. Singapore Morocco* 3 2,9 2,8 2,8 2,7 2,5 2,1 2,1 2 1,9 1,9 1,8 1,8 1,7 1,7 1,4 1,4 1,3 1,3 1,2 0,9 0,8 0,4 4 3,7 3,3 3,3 3,3 3,2 5 4,9 4,6 4,5 5,6 5,3 5,2 7,8 7,8 7,5 7,1 7 6,7 9,4 9,2 14,7 13,8 13,5 12,3 12, , ,4 16,7 16,3 16,3 16, ,6 20,4 19, , , Worldwide Kidney Transplant from Living Donors 2012 (pmp) * 2011 data
15 Croatia Belgium Spain Norway France Portugal USA Italy Sweden Austria Slovenia Switzerland Germany Ireland Czech Rep. UK Finland Canada Argentina Netherlands Denmark Brazil Poland Luxembourg South Korea Estonia Hong Kong Iran Uruguay Israel Slovak Rep. Puerto Rico Lithuania Belarus Taiwan* Colombia Chile Greece Hungary Romania Turkey Saudi Arabia Costa Rica Panama Russia Ecuador Mexico Dom. Rep. Malaysia Bulgaria Singapore Tunisia Ukraine* Venezuela 1 0,9 0,8 0,1 0,04 0,01 1,7 1,5 1,4 5 4,9 4,6 4,6 4,5 4,2 4,1 3,9 3, ,5 15,1 14,9 14,8 13,5 12,5 11,4 10,9 10,7 10,1 10 9,6 9,4 8,7 8,4 8,4 8,4 8,2 7,9 7,4 6,8 6,3 6,3 5,7 5,5 5,5 5,4 5,3 18,2 20,1 22,7 22,6 29, Worldwide Liver Transplant from Deceased Donors 2012 (pmp) *2011 data
16 South Korea Taiwan* Turkey Hong Kong Saudi Arabia Belgium Canada Azerbaijan Romania Germany Croatia Israel Russia Sweden Argentina USA UK Switzerland Spain Brazil Colombia Ukraine* Iran Costa Rica Venezuela Poland Netherlands Italy Bulgaria Singapore Belarus Tunisia France Czech Rep. Mexico 1,1 1 0,9 0,8 0,7 0,7 0,7 5 0,5 0,4 0,4 0,4 0,1 0,1 0,1 0,07 1,8 3 2,3 3,2 2,9 4,6 9,7 16, Worldwide Liver Transplant from Living Donors 2012 (pmp) * 2011 data
17 Slovenia Croatia USA Austria Belgium Czech Rep. Norway France Spain Sweden Denmark Switzerland Germany Finland Luxembourg Italy Canada Taiwan* Slovak Rep. Hungary Lithuania Portugal Argentina Hong Kong Belarus UK South Korea Netherlands Ireland Uruguay Poland Colombia Israel Greece Puerto Rico Chile Brazil Iran Russia Turkey Saudi Arabia Lebanon Lativa Mexico Bulgaria Dom. Rep. Romania Singapore Ukraine* 1 0,9 0,8 0,8 0,75 0,5 0,4 0,1 0,03 0,02 3 2,9 2,8 2,7 2,4 2,3 2,2 2,2 2,2 2,2 2,1 2,1 2,1 1,8 1,6 1,5 1,2 1,2 5,2 4,8 4,6 4,4 4,2 4,1 3,9 3,9 3,9 3,8 3,7 3,4 3,3 6,4 6,2 7 6,9 7,5 7, Worldwide Heart Transplant 2012 (pmp) * 2011 data *2011 data
18 Austria Belgium Switzerland Sweden Luxembourg Norway USA France Denmark Spain Finland Israel Netherlands Germany Canada Ireland UK Uruguay Italy Czech Rep. Estonia Portugal Chile Lithuania South Korea Argentina Saudi Arabia Poland Brazil Turkey Taiwan* Colombia Iran Russia Mexico 1 0,8 0,8 0,5 0,4 0,4 0,05 0,04 0,01 1,3 1,3 1,9 1,9 1,7 2,4 3,2 3,1 2,9 4,4 4, ,9 4,8 5,9 5,6 5,5 5,3 5,3 6,5 6,5 6,3 11,7 14,9 16 Worldwide Lung Transplant 2012(pmp) * 2011 data *2011 data
19 Norway Luxembourg Switzerland UK Puerto Rico Sweden Belgium Czech Rep. Netherlands Germany Portugal Spain Croatia Canada Austria Argentina Uruguay Finland Morocco* Italy Cyprus Poland France Israel USA Brazil South Korea Taiwan* Hungary Iran Russia Ireland Turkey Colombia Chile Mexico 0,1 0,1 0,1 0,01 0,4 0,9 0,8 0,8 0,7 0,7 1,3 1,3 1,2 1,1 1,1 1,5 1,5 2 1,9 1,8 1,8 1,8 1,7 1,7 1,7 2,2 2,5 3 2,9 2,9 3,4 3,6 3,9 5,6 6 Worldwide Pancreas Transplant 2012 (pmp) * 2011 data
20 5. ASIA-OCEANIA REPORTERS COUNTRY Hong Kong Malaysia Philippines Singapore South Korea Taiwan ORGANIZATION Organ and Tissue Authority Hospital Authority Organ Transplant Network (JOTN) National Transplant Resource Centre Organ Donation Registry National Kidney and Transplant Institute National Organ Transplant Unit (MOH) KONOS - Korean Network for Organ Sharing Taiwan Organ Registry and Sharing Center
21 6. CONCLUSIONS IRODaT is able to provide statistics within a short timeframe, based on a worldwide network of experts involved in organ donation and transplantation. The data have proved to be of an extreme value to scientific programs, social and governmental bodies Worldwide Registry Open - Data Free - Friendly
22 THANK YOU IRODaT webpage Mail contact
23 ISODP Congress 2013 by International Registry in Organ Donation and Transplantation IRODaT is licensed under a Creative Commons Attribution 4.0 International License. Based on a work at Permissions beyond the scope of this license may be available at 23
INTERNATIONAL REGISTRY IN ORGAN DONATION and TRANSPLANTATION
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